• CHDs are the most common birth defect

  • 40,000 infants are born with CHD in the US

  • 1 in 100 babies are born with a CHD

  • 25% infants with CHD will require a heart procedure within the first year of life

  • CHD is 50X more common in kids than childhood cancer

  • There is no cure, CHDs require life long follow up

  • CHDs are the most common birth defect to cause infant death

  • 25% of babies born with a Critical CHD like Greyson’s will pass away before their first birthday

  • Children with CHD are 50% more likely to require special education services than kids born without birth defects

  • Most causes of CHD are unknown

  • People with CHDs face a lifelong risk of health problems such as:

    • issues with growth and eating

    • developmental delays

    • lower exercise tolerance

    • heart rhythm problems

    • heart failure

    • sudden cardiac arrest

    • stroke

    • breathing problems

    • kidney failure

    • seizures

    • mental health challenges

    • increased risk of cancer.

  • CHDs can have important lifelong neurodevelopmental and neurocognitive effects, leading to challenges in:

    • education

    • employment

    • social relationships.

About CHD:

Our son, Greyson (3 months) hours after his first open heart surgery, the Glenn on 11/08/18

Organizations Leading or Supporting Research for a Cure: